The self-help principle
Self-help serves to cope with the disease and to support each other.
We are people affected by inflammatory bowel disease (IBD) or primary sclerosing cholangitis (PSC). We act according to the principle of “affected people for affected people”.
In addition to personal counselling and support for those affected and their relatives, the Berlin/Brandenburg regional association of the DCCV arranges contacts with self-help groups, doctors, nursing staff, hospitals and spa clinics. In case of questions or problems with health insurance funds, social security and pension offices, pension insurance providers or employment offices, the social law working group is there to help DCCV members. Members also receive legal protection from German social courts.
In the national association, the child/parent initiative of the DCCV mediates contacts between parents who are looking for advice or can give advice. A working group deals with questions of nutrition therapy. Other working groups bring together young adults and people affected by pouch, stoma or PSC.
The DCCV supports local self-help groups and organises training events for affected persons, relatives, doctors and nursing staff. The association informs about the disease patterns through targeted public relations work.
Der Bauchredner, the members’ journal, is published four times a year with a circulation of 22,000 copies.
By the way: The DCCV, founded in 1982, is organised exclusively by affected people. It is one of the large associations of patients in Germany.